Dashboards vs. AI

For years, dashboards have been the gold standard for analyzing survey data, and we use them frequently in our business. They provide users with…

Patient Experience Benchmarking

There has been a lot of talk in the life science industry about patient-centricity in recent years, and many companies have made honest efforts to…

Author Raymond A. Huml on FSHD

FSHD: Keeping the Patient Voice at the Center of ProgressFacioscapulohumeral muscular dystrophy, or FSHD, is often…

June is MG Awareness Month

As part of PatientSight's "The Patient Experience Benchmark Report", 102 people in the US living with generalized myasthenia gravis (gMG) were…

Friedreich's Ataxia Awareness Month

Open-ended survey response summary from people living with or caring for someone with FA (n=18). Friedreich's Ataxia (FA) is a rare…

May is ALS Awareness Month

In recognition of ALS Awareness Month, I am sharing some research findings. As part of PatientSight's Rare Disease Patient Tracker, we asked 20…

Cell & Gene Therapy

Cell and gene therapy (C/GT) has moved from scientific promise to clinical reality in a growing number of diseases, particularly in rare and…

World Hemophilia Day 2026

In recognition of World Hemophilia Day (April 17th), PatientSight is sharing findings from open-ended survey responses that shed light on the…

Rare Disease Study

No two rare disease journeys are the same, but there are many shared experiences that are revealed in this large 2025 study of nearly 400 patients…

Patient Co-Design in Clinical Trials

Defining co-design: beyond the feedback formOne of the most persistent misconceptions discussed was the difference between…

PatientSight Podcast

PatientSight President Dave Muggler speaks to Priscilla McKinney about the importance of rare disease patient research and solutions to some of…

AI-Enabled Patient Persona Videos

It seems like you can’t scroll through news feeds without videos popping up. YouTube and TikTok remain widely popular social media platforms. Why?…

Curiosity About Patients

It’s time for rare disease commercial leaders to cultivate deeper curiosity about patients. To get treatments to patients, teams must embrace the…

Agility in Market Research

Marketing and insights professionals have their hands full when supporting a brand in the pre-launch phase- they need to plan and conduct various…

PatientSight Launch

In recognition of Rare Disease Day- February 29th, PatientSight, LLC is proud to announce a new…